Sometimes writing in this blog after experiencing the actual events takes more energy than I have, but here's a try. I can't remember if I mentioned it in the prior post, but after being admitted back into Good Sam's after the stroke Dad went back to the nursing/rehab facility or "jail" as he now likes to refer to it. While there we experienced moments where one day he'd be so-so as far as his mood, to days (four to be exact) where he refused to even change his clothes or his adult undergarment. Taking him to and from Affordable Dentures for a fitting that day was awful, because he smelled strongly of urine and...Oh my gosh. I did everything I could before and after returning to the facility to get dad to change into fresh clean clothes but he was as obstinate about not changing as a child would be about taking a nap. When I mentioned it to the nurse, she said she had noticed an odor earlier and had discussed with him why a change of clothing was in order and he'd refused to change. She explained that they do not like to force the situation as their residents already feel as if so much has been taken out of their control. Although I understood what she was saying, Tuesday was dialysis day and I couldn't have Dad sitting in that recliner during treatment for three and a half hours smelling like he did. She promised the attendant would get him to take a shower. She kept her promise however the next day Dad insisted on putting on the same dirty, foul smelling clothes.
Dad's mood declined even worst over his stay in the rehab facility. I walked into his room one day and he was talking to his brother Charlie telling him that Debbie and I had changed his beneficiaries. He told Charlie, "I just can't see how they could do such a thing. But I guess they did it so that Angie could benefit." He'd also been telling everybody that we'd tricked him into going into the facility. To be honest the doctor suggested it to him and I was actually very surprised he agreed. Even though I know Dad's suffered a decline in his mental capacity with the stroke, it hurt like a mofo hearing him talk about us that way.
Now an update...Dad's back home and we hope, pray, beg for him to improve both mentally and physically. Physically, he's doing great--walking up and down the stairs already. Mentally, not so good. Sometimes he refuses to eat anything because he feels like what's the use. "I can't have hostess cupcakes," he said tonight. "So what's the use?" Or he goes on and on that hopefully the next stroke will be the one to take him out. Tonight his sugar was low--78, which concerns me but he said, “Well hopefully it’ll get lower during the night and…whatever.” I hate it when he says things like that. It makes me angry and sad...mostly angry. Okay, enough for now.
A brutally honest look into the life of a loving daughter, turned caregiver, just trying really hard to be a loving daughter/caregiver while taking care of her dad, and childhood super hero. That's all.
Sunday, April 24, 2011
Thursday, April 14, 2011
Past Month or So
The last few weeks have been ugly for Dad and all of us. He went into a skilled nursing facility for rehab on Thursday, March 18th and early the following Tuesday morning I get a call from Rainier Vista, the nursing facility, telling me that he'd fallen off his bed the night before. The nurse on the phone assured me he was alright and that they lowered his bed to prevent possible injury in the future, and had him sitting in a chair and would check in on him every 15 minutes. Apparently in these facilities they can't put rails on the bed because of WA state law. It was explained to me that nursing facilities are homes to some people and it isn't right to restrain people in their own homes, even if the illness is serious and the chance of falling is inevitable. So he fell, and when I got there they had him sitting in a chair. He complained of lower back pain and wanted to lay down but the assistant on duty said the shuttle would arrive shortly to take him to dialysis, which was a surprise to me because when he was admitted we were told they didn't have shuttles for the timeframe that he was scheduled 3:45 pm). So since the shuttle wasn't due to arrive for another two hours I told the guy I wanted Dad to lay in bed until the last possible minute to ease the pain in his lower back (probably the kidneys), to make him comfortable before he had to be carted off to Davita Dialysis center.
I hated seeing Dad wheeled onto that shuttle. His head was hanging over his chest and he just didn't look right. And he looked so forlorn. I followed the shuttle over to the dialysis center. I got there first, because the shuttle had to make stops to pick up other riders. About 15 minutes after I got there, it arrived, and Dad dropped off. I wheeled him into the facility and we were asked to wait in the lobby because it was still 45 minutes before he started dialysis. I didn't like the way he looked, something was off. His head was still hanging forward and he was not very responsive. I asked, "Dad, what's wrong?" And he'd mumble, "Oh my goodness, oh my goodness." I asked him if he needed a Tylenol and he said yes but when I tried to give two, the first went down with water and the second just sat his tongue. I said, "Dad, something's wrong and you're scaring me." He mumbled. "I don't want to scare you." I went through the wide door leading to the room where several people reclined in chairs plugged into the dialysis machine, grabbed a nurse and explained Dad's condition. I told her he wasn't acting right, something was wrong. The nurse came out and took his vitals, checked his sugar and said he seemed okay. She went back into the other room. Right after that Dad started moaning and shaking with drool coming from his mouth. I yelled for someone to help him. A couple people came running and agreed to call an ambulance after questioning me as to whether this was normal behavior for him. Hmmm...drooling from the mouth and shaking violently...really? When the ambulance arrived, the paramedics did there thing and one of the guys asked Dad to smile. Dad's face didn't change one bit. "Dad, he asked you to smile." Dad mumbled, "I am." But he wasn't. I-was-terrified. Vickie walked in the door at the same moment I felt my composure crumble. I was on the verge of reverting into a two year old and balling my eyes out.
The ambulance took him back to Good Sam where he was admitted for almost two weeks. He'd had a stroke. In addition, he was put on some new medication to treat an increased heart rate and low blood pressure.
And there you have it. But I'm not done because there's so much more to this update.
I hated seeing Dad wheeled onto that shuttle. His head was hanging over his chest and he just didn't look right. And he looked so forlorn. I followed the shuttle over to the dialysis center. I got there first, because the shuttle had to make stops to pick up other riders. About 15 minutes after I got there, it arrived, and Dad dropped off. I wheeled him into the facility and we were asked to wait in the lobby because it was still 45 minutes before he started dialysis. I didn't like the way he looked, something was off. His head was still hanging forward and he was not very responsive. I asked, "Dad, what's wrong?" And he'd mumble, "Oh my goodness, oh my goodness." I asked him if he needed a Tylenol and he said yes but when I tried to give two, the first went down with water and the second just sat his tongue. I said, "Dad, something's wrong and you're scaring me." He mumbled. "I don't want to scare you." I went through the wide door leading to the room where several people reclined in chairs plugged into the dialysis machine, grabbed a nurse and explained Dad's condition. I told her he wasn't acting right, something was wrong. The nurse came out and took his vitals, checked his sugar and said he seemed okay. She went back into the other room. Right after that Dad started moaning and shaking with drool coming from his mouth. I yelled for someone to help him. A couple people came running and agreed to call an ambulance after questioning me as to whether this was normal behavior for him. Hmmm...drooling from the mouth and shaking violently...really? When the ambulance arrived, the paramedics did there thing and one of the guys asked Dad to smile. Dad's face didn't change one bit. "Dad, he asked you to smile." Dad mumbled, "I am." But he wasn't. I-was-terrified. Vickie walked in the door at the same moment I felt my composure crumble. I was on the verge of reverting into a two year old and balling my eyes out.
The ambulance took him back to Good Sam where he was admitted for almost two weeks. He'd had a stroke. In addition, he was put on some new medication to treat an increased heart rate and low blood pressure.
And there you have it. But I'm not done because there's so much more to this update.
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